Tuesday, December 06, 2016

Vision Loss due to Hydrocephallus - VP Shunt Revision

Its is really hard to get notified from a 2 and half yrs baby about the failure of the shunt (VP Shunt) which has been already placed.

The symptoms are :
1. Headache 
2. Vomiting
3. Sunset eyes 

The next immediate step would be to take the baby for CT-Scan, which would show the accumulation of the excess fluid in the babies head. When we fail to get notice of these things,the excess fluid pressure would cause some damage to the nervous originating from brain, which inturn may lead to disabling of the feature related to the affected part of the brain.

There are cases that the VP Shunt may fail permanently or on a temporary basis (works on and off,in this case it may not get detected in the CT-Scan) 

Below is the case of shunt failure of a 2.5 yr baby

Around in the month of september, the baby had vomiting and headache complaint..and whatever you feed her gets thrown out with a span of 20 - 30 mins
so we didn't want to take the risk and we took the baby for the CT-Scan next day and the scan result showed us No Hyderocephallus and we were happy and the vomiting and headache stopped


Later on after a month later, 21st Nov, the baby again had a complaint of the headache and vomiting, and we took her to the Scan center next day.
By this time, the vomiting stopped and she had very normal diet on this day. The scan result showed us it was a normal.



So here is what happened, the shunt was functioning on and off, which was not detected in ths CT-Scan. Now the  baby was almost weak, since from the previous day what ever she had eaten was vomited.

The following day morning the baby was normal, she ate only limited food, whatever she had asked was given. Around 11 am she again had vomited and complaint of headache. We tried feeding her with liquid and eatables she liked.. but this did not help..even a 10 ml of water she takes in was thrown out.



Around 4 pm in the evening she started crying and was not manageable , so we took her to her pediatrician nearby, it was around 6 pm in the evening, he examined her and said that the pulse rate are dropping and the eye's are droopping and these are certainly the symptoms of the Shunt Failure.

He advised us to reach the hospital immediately not even wasting a second.. we also rushed her to the hospital, while on the way we are keeping are awake...and interacting with her to check her responses... in-between we were struck in the heavy traffic around (7 to 7 30 pm). We now decided to call the hospital about the baby's condition to our Neurosurgeon, (luckily my wife had the hospital phone number in her memory and need not search in the phone.) on calling to the hospital
we came to know that, it was already informed by Pediatrician, and they said "Yes we are aware of it...and where are you.."

On reaching the Hospital, my wife took her running to the Emergency, the duty doctor's put her on the basic statistical checks and then started asking about the baby's history..and then they informed the neurosurgeon. Now the baby's eye's closed was not responding and after a few minutes her hands and legs became stiff and in a stretched position, until that she was able to hear our voice and responding, after this condition she collapsed..they took to the CT-Scan and the Surgeon told that the shunt is not functioning and need to do the Shunt Revision immediately.



 
So it took 40 mins for the operation and was completed by 9:30 pm. Now she was moved to the Pediatric ICU, and was slowly coming out the anesthesia. Despite having a good sleep, she woke up intermediately (may be due to pain). she did not open her eyes, but was responding to us.

After the Operation

After 12 to 14 hrs the baby was shifted to the ward for observation, there was IV in the hand. Now she was able to open the eyes but could not see us, so she got frightened and slept on my shoulder only, then we slowly stared speaking to her, she was responding well, but not able to sit,stand or see...and also not eating or drinking anything. By this time my wife as doing all the finding in the net of similar cases and what and whom to meet next....lot of confusion among us also

We got discharged from the hospital, the surgeon said that it should all get to normal slowly, once you get back home. After coming home she started drinking water through spoon, and eating bread soaked in milk all the activities were carried out by putting her on the bed only.






Discharge summary.

Checked for the Ophthalmologist.


  We made sure that, the vision part is not affected from the aspect of eye and it was checked with one of the Pediatric Ophthalmologist, anyway we had to wait for the MRI scan of the brain.


Next we had to take the MRI Scan of the Brain, but our only worry was the baby had already was not eating and we had to put her to sedation using syrup for the eye check ups, and she did not sleep even after giving the sedation syrup, and the only way was to go for anasthesia through doctor. Make sure that you leave the scan
center once the baby is wakes up after the anaesthesia is over

Finally the MRI of the Brain was done, the report said that there was change of pattern of the Brain image  



After consulting the MRI of the Brain with a Pediatric Neurology doctor and  second opinion with the Neurology doctor, we are advised that the nerve which connects the brain to the eye was not functioning properly, this was because when we rushed her to the hospital on 22nd Nov, she went into a state called "decerebration", which meant that, due to pressure of the CSF fluid in the head, some of the parts of the brain and its nerves lost the blood circulation and the baby goes to a state in which she streches her legs and hands and the body becomes stiff

The doctor's say that these nerve's usually should heal or come back to normal when the blood circulation to these nerves start flowing as normal, and it may take upto 3-weeks to 3 months or 6 months time. So till then we need to observe the baby's vision activity how well she is progressing, like.. what colors she is able to see, how far she can see, what all are the objects she is able to identify...lot more things..

Nothing is confirmed until...Now.

Sunday, February 08, 2015

CTC Social Trek to Nagalapuram along with Anbu Illam kids

So far only i was involved in Trekking and outdoor activities with CTC. This is the first time taking my daughter,Rakshana studying in UKG. I felt it was a better to choice to introduce her to trekking along with kids.


























As the registration were closed a week before, and confirmation and prepratory mails were firing in to make ensure that there is no shortage of transport.

I told Rakshana that we are going to go for trekking this weekend and it will be along with kids from a home. She was exicited, but was quite aware what a trekking would like be as she has seen photos the trek i had earlier gone.

 I was more excited for this trek than my daughter. i made her sleep early and i packed up things and went to bed by 11:30 pm, but i got up at 3:30 am, boiled some raw groundnut, to carry it along the trek. I freshed up myself by woke up rakshana by 4:30 am, and we are out in car by 5 am, it was very cold in the morning, Rakshana was very eager to see the kids at home.

After some co-ordination with the organizer's and volunteer's we reached the home at  Mathur, by 6 am. Srinivasan was in our car, he showed us the way to reach the home. We made the kids all stand in line and counted them, they were all 19 of them +2 Adults from their home.



 












Rakshana and one of the kid from the home were in the co-driver seat,two of them along with srinivasan were at back.

They all started to talking each other, finally we met the other CTC groups at Madhavaram junction and drove along to Nagala. We had several regrouping to make sure that all the 9 cars are in sync. It was around 8 am, we had stopped for breakfast. Since all the kids were empty stomach from morning 5 am, we all had nice breakfast Idly and vadai + chantini, thanks to the organizer for the wonderful breakfast, following the breakfast we had photo sessions. Here the kids wanted to shift cars..:-) . 












Again we counted and made sure that we had all the 19 kids on board. Now our next stop was the Base Camp of nagalapuram.

 













We reached the Base of the Nagala around 9:30 pm, the organizers distributed the food packets to all us, and each of them had to catch hold on one kids proceed to the trek. Some of the kids had to go barefoot, some of the volunteers had to carry the kids . Rakshana was happy to see the big mountain, and i told that we are going to enter in this forest, so got her shoes on + sunglasses and cap on top. Her  immediate question was.."can we see animals like Lion, Tiger..etc...? " i had to give a big explanation on why we can find animals here..! Walk the Talk...we crossed the Dam and started entering to the forest, by now she became friendly with other CTC members..and kids.

 














Now she found a partner for her "Jothsana", muthy's daughter she was studying in 2 nd Std. At around 10:30 am we reached the first stream of the Nagala. Its all here the fun started, the kids all were into the water along with the guidence of each of the CTC member, the camera's started clicking.....

 










We stayed here for about an hour and left the place by 11:15 am, now it was steep climb, we had to climb over the big mountain and reach the other side..
On some places rakshana felt difficult to climb...and ofcourse..every body was ready to carry her...but she told that she will get on me only :-( ..! 

 










































After about another one hour of trek through Rocks and valley...we reached the Second pool at around 12 pm, Since it was very sunny...there was no hesitation among the kids to get into the water..! Again all the kids were into water, they had all the fun for 1 hr. Now it was lunch time and we opened up the Lemon rice for the lunch.  





























Another group with peter went along ahead of the pool to visit two more falls, the magic pool and the sliding pool. The plan was like who ever interested can go along withe Peter and rest of them will stay at the same place . And the group will be back by 4 pm. So we all stayed back, Thilak started engaging the kids with some singing.. Photographers were busy with the camera's... Rakshana was more of interested in playing the stream water and watching the fish along with jothsana, so they both formed a pair. 

So the singing activity with the kids continued with kids..and also given points to them..and those who get more points were allowed to get into the pool for the second time. (No that was not really true...). At around 2:30






























pm, most of them again got into the pool again. When the session went till 3:30 pm,and around 4 pm the other group was back from the trek

We started heading back to the base camp,where we had parked our cars, by now the kids were tired and to boost up them.. we needed something for them.
it was by this time..two other volunteers (i think it was anusha and pooja sree) had started distributing the gifts they had got for the kids. it had crayons,pencils,sharpaner,colorpencils and a dairy milk. It certainly made them happy.  
































We reached the Dam by 5:30 pm, took some group photos and a 15 mins walk to the car parking . After reaching the car parking, volunteers had some more snacks in the car. So now we were also hungry..and shared it with all.

 














We all left Nagala by 6 pm, heading towards the kids home, most of the fell asleep in the car. We dropped the kids at their home at around 9 pm.

I and rakshana reached back home at 10 pm with wonderful memories and new friends. 
A day spent really worth....!




Full set of photos can be view at See All Photos


















Sunday, September 07, 2014

Chennai Trail Marathon 2014

It was on sept 7th 2014, woke up at 3 30 am , venue was at Gojan College, Near shollavaram air strip, 
it was my 3rd full Marathon and second consecutive FM at this wonderful venue.
and my finish time was 6:30 mins, it was barefoot run.


 
 Below is running routes
 

  This time i decided to do some thing different, so i took my digital camera along with me and started to take photos of all the photographers where were capturing the priceless moments of the runners ...

Here are the some the photos from my camera